Pain Resources for Patients and Their Families
Although the primary purpose of this site is to provide a resource to health care professionals, I recognize that some people who explore it have pain themselves or care about someone who does. I'm attempting, therefore, to compile a list of links that may be of some value for people with pain. These sites vary enormously in focus and quality. Some are the public service efforts of health care providers, while others are advocacy groups formed by patients with one or another painful condition. Most of them contain further links.
DISCLAIMER: My listing a link below does not imply that I, the University of Utah, or the Fred Hutchinson Cancer Research Center endorse it, its mission, or the person or organization behind it. These links are here for informational purposes only.
General Resources
AllRefer.com Health and Medical References
Lamborne's Chronic Pain Links
Health Hotlines: Toll-Free Numbers for Health-Related Organizations
Clinical Trials Listing Service
Mayo Health O@sis
Health Direct - Information and Hotlines
Hospital Web (lists all US hospitals on the WWW by state)
HealthGate (free access to Medline searching)
General Health
IDA - Invisible Disabilities Advocate Web Ring Page
The Boulevard: Disability Information, Services and Products
New York Center for Acupuncture and Alternative Medicine
"drkoop.com" - A Health Network Resource
Shuteye Online - A Resource for Persons with Sleeplessness from Searle
Drug Information for Patients
Center for the Advancement of Health
Standard Elements for Useful Patient
Information on Medicines
The Virtual Medical Clinic
Angel Flight
Healthopedia
General Pain and Chronic Pain
American Pain Foundation
American Chronic Pain Association
American Chronic Pain Association, Inc.
ACHE: American Council for Headache Education
American Society for Action on Pain
Bone & Joint Information (Univ of Wash Orthopaedics)
Mayday Upper Peninsula Pain
Project
Chronic Pain and Illness Lifeline
MedicineNet
National Chronic Pain Outreach
National Chronic Pain Outreach Association
National Foundation for the Treatment of Pain
National Headache Foundation
NINDS Chronic Pain - Hope Through Research
North American Chronic Pain Association of Canada
North American Society for Action on Pain
Our Chronic Pain Mission
Overcoming Pain
Partners Against Pain
Pediatric Pain Education for Patients,
Families, & Nurses
Pediatric Pain: Science Helping Children
People in Pain
Post-Polio Syndrome
Rest Ministries - Bible Study and Chronic Pain
Pain.USA
North American Chronic Pain Association of Canada
Recommended Reading: Chronic Pain
US Vets with Chronic Pain (Houston)
Specific Pain Syndromes and Painful Disorders
Abdominal Pain - When to Seek Help for Your Child
Abdominal Pain - Basic Information
Abdominal Pain - An Emergency in Sports Medicine
Abdominal Pain - In runners
National Back Pain Association (United Kingdom)
Breast Pain
Complex Regional Pain Syndrome (See also RSD below)
Facial Neuralgia Resources
AHA - Angina Pectoris
American Council for Headache Education (ACHE)
Arthritis - Resources from Searle
Dr. Whitworth - Central Pain
MCW Healthlink - Central Pain Syndrome
The Nature of Pain (McHenry on Central Pain)
Crohn's Disease Web Page
Crohn's & Colitis Home Page
Crohn's & Colitis Foundation of America
Crohn's & Colitis Foundation of Canada
Endometriosis Assoc: Houston Support Group
Irritable Bowel Syndrome Self-Help Group
Jaw Pain and Neuralgia-Inducing Cavitational Osteonecrosis
Face Pain Resources
USA Fibromyalgia Association
Fibromyalgia and Chronic Myofascial Pain Syndrome
American Foundation for Pain Research (interstitial cystitis)
Help For Headahces
Interstitial Cystitis Association
Intercyst.org
The Interstitial Cystitis Network: Online Support Groups
The Lupus Home Page (Hamline University)
Migraine Association of Canada
Migraine Awareness Group (M.A.G.N.U.M.)
Migraine Foundation of Australia
Migraine (the Equinox Alternative magazine)
Migraine Information Center (JAMA)
The Migraine Pane
Migraine Information Site
Chronic Myofascial Pain Syndrome Information Network
ISTOP: Institute for the Study and Treatment of Pain (Myofascial Focus)
Pain Central
Pelvic - A Patient's Guide to Adhesions and Related Pain
Rhonda's Migraine Page (includes migraine art, poetry)
NHF: National Headache Foundation
Post-Polio Syndrome Central
Post-Polio Syndrome Information
Understanding Post-Polio Syndrome
NINDS - Post-Polio Syndrome
Reflex Sympathetic Dystrophy (RSD) Links
The RSD Links Page
Reflex Sympathetic Dystrophy Syndrome Association of America - Guidelines
The American Society for RSD/CRPS
Reflex Sympathetic Dystrophy Syndrome Association of California
NINDS - Shingles
Shingles - Pain from Post-Herpetic Neuralgia
After Shingles
Sjogren's Syndrome Foundation
Spondylitis Association of America (SAA) - Ankylosing Spondylitis
Tennis Elbow Central
Tennis Elbow
Trigeminal Neuralgia Clinical Resources (facial pain)
Spine-Health.Com
Dr. Glazer's Vulvodynia.com
National Vulvodynia Association
Dr. Glaser's Vulvodynia.com
Vulvodynia Support Group
The Vulvodynia Information Web Portal
The Vulvar Pain Foundation
Mayo Clinic: Vulvodynia
Whiplash 101
Whiplash - San Francisco Spine Institute
Cancer Pain and Cancer Survivorship
Cancer Pain Education Resource
Questions and Answers about Cancer Pain - ASCO
Cancer Pain- Let's Talk About It
Guide to Internet Resources for Cancer - Supportive Care
A Survivor's Guide to Bone Marrow Transplant
Understanding Cancer Pain - NCI
Cancer Support Groups
OncoChat: Online Support for Cancer Survivors, Families and Friends
AHCPR "Managing Cancer Pain" Consumer Guide #9
Helping People Cope: Pain Control
Children Coping with Pain: No Fears No Tears
Pain-Related Psychological Problems
BDD: Recognizing and Treating Imagined Ugliness
Self Injury: You Are Not the Only One
Australian Self-Harm/Injury Network
Self-Injury Resources
Mollykat's Self Injury Links Noodle's Panic-Anxiety Page
Mercurial Madness - Fibromyalgia
Suicide Awareness & Education
The Web of Addictions
The Stanton Peele Addiction Web Site
Mental Health Infosource (includes chat room)
Dr. John Grohol's Mental Health Page
Therapeutic Music and Art
Comte's Anti-Suffering Music
Back to Dick Chapman's home page